Agency for Healthcare Research and Quality's (AHRQ's) Policy
Effective Date: October 2015
- For sharing of data in digital format, all AHRQ-funded researchers will be required to include a data management plan for sharing final research data in digital format, or state why data sharing is not possible. Data management plans will be evaluated by AHRQ staff and peer review committees for merit while considering the values of long-term preservation, access, and the associated cost, and administrative burden. AHRQ expects the timely release and sharing of data to be no later than the acceptance for publication of the main findings from the final dataset. The specific time will be influenced by the nature of the data collected. Researchers will be directed to work with AHRQ staff and its contracted commercial repository to deposit data upon or prior to the embargo period. It may not be feasible to share all data; the costs and benefits of sharing data should be considered in data management planning. AHRQ intramural research is conducted using public use data. These data are also available to the public. AHRQ data that include personally identifiable data are available to the public in the AHRQ data center. AHRQ will attempt to make all research data available to the public by creating de-identified public use data files.
- If an AHRQ-funded grant, cooperative agreement, contract or intramural research project transforms or links datasets, rather than producing a new set of data, the researchers will be required to submit a data management plan. If there are limitations associated with the data sharing agreements for the original data that preclude subsequent sharing, the research applicants must explain these limitations.
- Data management plans will include:
- A plan for protecting confidentiality and personal privacy.
- A description of how scientific data in digital format will be shared, including a plan for long-term preservation and access to the data and the associated costs, or explanation of why data sharing is not possible.
- AHRQ will promote the deposit of data in publicly accessible databases, where appropriate and available .